Co-producing cancer survivorship resources with and for people with intellectual disability
Project Details
Funding partner
MRFF
Timeframe
2025-2027
Publications
Sexton, A., Bellon, M., & Baldock, J. (2026). Reasonable adjustments in cancer care for people with intellectual disabilities: Perspectives of Australian healthcare professionals. Journal of Intellectual & Developmental Disability. https://doi.org/10.3109/13668250.2026.2699534
Resources
An easy-read resource for this project is not currently available.
Team
DCI researchers
Flinders University Researchers
Professor Catherine Patterson
Professor Lisa Beatty
Dr Emma Kemp
Research partners
Cancer Council SA- Dr Jennifer Baldock, Amanda Robertson, Bronte McQueen
UNSW and National Centre of Excellence in Intellctual Disability Health- Professor Julian Trollor
SACID- Felicity Crowther
SAIDHS, NALHN- Stephanie Searle
University of Sydney- Professor Deborah Bateson
Minda Inc.- Scott McMullen
Cancer Council Australia- Drew Meehan
Multicultural Community Council of SA- Julie Hoare
SALHN- Dr Jessica Smith
Our Voice SA- Alison Vivian
Summary
This two-year inclusive co-production study will address inequities in cancer survivorship for people with intellectual disability by exploring their experiences, needs and preferences, alongside those of healthcare professionals, family and friends, and paid disability support workers. Findings will inform the co-design and evaluation of tailored, accessible survivorship resources and supports to improve cancer care and outcomes for people with intellectual disability.
Impact
This study will identify areas of unmet need and lead positive change in equitable and accessible health practice for people with intellectual disability and cancer. Resources developed from this study will be freely available on Cancer Council websites.