End-of-life care needs of adults with long-standing physical disability: perceptions of individuals, families and service providers

It is generally assumed that routine palliative and end-of-life care is appropriate for people with long-standing physical disability. It remains unknown whether and to what extent needs may differ from the general population and how individuals with long-standing physical disability can be supported to partake in discussions with those who care for them about the care they want and express their priorities and values. Through a series of interviews this research project explored the specific needs of people with long-standing physical disability at end-of-life, from the perspectives of individuals with long-standing physical disability, as well as bereaved family members and disability and health service providers.