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End-of-life care needs of adults with long-standing physical disability: perceptions of individuals, families and service providers

Project Details

Funding partner

Flinders Foundation


2018 - 2020


Publications will be posted here when available.


DCI researchers

Flinders University researchers

  • Associate Professor Kim Devery

  • Dr Deidre Morgan

  • Ms Deb Rawlings


It is generally assumed that routine palliative and end-of-life care is appropriate for people with long-standing physical disability. It remains unknown whether and to what extent needs may differ from the general population and how individuals with long-standing physical disability can be supported to partake in discussions with those who care for them about the care they want and express their priorities and values. Through a series of interviews this research project explored the specific needs of people with long-standing physical disability at end-of-life, from the perspectives of individuals with long-standing physical disability, as well as bereaved family members and disability and health service providers.


This research is vital in helping to guide the development of effective care and planning policies, as well as resources and guidelines, for individuals with long-standing physical disability at end of life.


An easy-read resource for this project is not currently available.

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