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Positive behaviour support for people with frontotemporal dementia: a family education program

Project Details

Funding partner

Charles Perkins Centre Active Ageing Research Node, The University of Sydney


2018 - 2019


O’Connor, C., Fisher, A., Cheung, S., Caga, J., & Piguet, O. (2021). Supporting behaviour change in younger-onset dementia: mapping the needs of family caregivers in the community. Aging & Mental Health, AHEAD-OF-PRINT:1-10.

Fisher, A., Cheung, S.C., Connor, C.M.C., & Piguet, O. The acceptability and usefulness of positive behaviour support education sessions for frontotemporal dementia families: A pilot study. Journal of Geriatric Psychiatry and Neurology, Under Review

Family Education Workbook


DCI researchers

Research partners

  • FRONTIER Brain and Mind Centre, University of Sydney - Professor Olivier Piguet (lead)

  • Hammond Care - Dr Claire O’Connor


This two-phase project examined (1) the presence of challenging behaviours in people with frontotemporal dementia and current behaviour support strategies from the perspective of family members, and (2) the acceptability and usefulness of positive behaviour support family education sessions in frontotemporal dementia (FTD). In doing so, this project aimed to improve the everyday functioning of people with FTD by increasing the capacity of support people in understanding and supporting behavioural changes in FTD.


Findings from this project have informed recommendations for PBS education programs and interventions in dementia. These findings will be used as proof of concept for larger trials of PBS with other groups of people with dementia.


An easy-read resource for this project is not currently available.

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