Promoting respectful death at home for people with intellectual disability living in Supported Independent Living
Project Details
Funding partner
Minda Inc.
Timeframe
2025-2026
Publications
Publications will be posted here when available.
Resources
An easy-read resource for this project is not currently available.
Team
DCI researchers
Dr Jessica Young
Research partners
University of Canberra- Dr Macey Barratt (lead)
Minda Inc.- Amanda Tate, Kirsty Klomp, Rochelle Mendoza
Summary
This study explored experiences of implementing the Dying with Dignity model of care for people with intellectual disability who choose to die at home in Supported Independent Living at Minda. It explored stakeholder experiences of the model, identified key facilitators and barriers to its implementation, and generated recommendations to enhance the model and support high-quality end-of-life care in a setting that reflects the person's perferences and needs.
Impact
Findings will inform the development and refinement of an end-of-life model-of-care, and contribute to policy on supporting respectrful choice and person-centered end-of-life practice for people with intellectual disability living in Supported Independent Living.